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Delta's History Part 1
Just a few days old.Delta was born in September of 2007 a full term healthy baby girl. She weighed in at 6 pound 14 ounces and was 19 inches long. She seemed perfect in every way. She had two...
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Delta's History - Part 2
Reading all her books before taking them to the library.I left you last right before Delta's first birthday. We celebrated Delta's first birthday with friends and family at my parents home. We had a...
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Delta's History - Part 3 Finally Catching Up to the Present
Delta and Echo at Echo's 1st Birthday 3/14/2010In January of this year it was decided that Delta should have a swallow study. Perhaps that would explain why she wouldn't eat. The swallow study was...
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Feeding Tube Awareness Week - Day 1
Many of you know that my fourth child, Naomi, has a feeding tube. This week is the first ever Feeding Tube Awareness week. We are very excited to be a part of this. Each day we will do something a...
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Feeding Tube Awareness Week - Day 2
Today's topic for feeding tube awareness week is pictures before and after. Naomi was quite thin before her tubes, you could count her ribs. Now you've got to tickle her to find those...
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Blenderized Diet - How Naomi Gets Fed...Feeding Tube Awareness Week - Day 3
Addressing Misconceptions: What do you want other people to know about feeding tubes? Naomi can have real food. It takes a little more work but Naomi now mostly gets blended up real food in her tube...
View ArticleTell Me How to Get to Sesame Street
We all watched Sesame Street as kids or at least we knew someone who did. For years Sesame Street has shown thousands of different children and adults representing our diverse culture. They have had...
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Questions - A Better Response to Those Who Asked and Those Who Wanted to.
Yesterday on Day 5 of Feeding Tube Awareness Week the topic was reaching out to friends and family. Letting them ask you the questions they have about feeding tubes. Well I posted of Facebook and...
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Feeding Tube Awareness Week Comes to an End
Today is the last day of our first Feeding Tube Awareness Week and I am sad to see it come to a close. This week has done amazing things for me and for the tube-fed community. It has given me a...
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I've Lost Touch With Reality
It looks like Naomi might be in a good position to try to wean from her feeding tube. She no longer vomits. Words cannot express how happy that makes me. Until you have cleaned vomit from clothing,...
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Jelly Belly Basket Weaving - Fun time with the girls
Yesterday was a momentous occasion. Bethany wove her first Longaberger Basket. I wove my second and had a great time with my mom, sister, niece, mother-in-law, sister-in-law, Bethany and Naomi (all...
View ArticleTurkey Disaster Diverted!
Naomi woke up this morning in a pleasant mood. That right there is reason for celebration. Naomi usually wakes up grouchy and there is a host of things that can send her mood into a tailspin in the...
View ArticleTo My Friends With Special Children...
We always gravitate to those like us. We join knitting circles, book clubs, hiking groups and community service organizations. We watch the game with other sports fans and we go to the beach with...
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Pinewood Derby
Last night was the AWANA pinewood derby. My kids love this event. I love this event. It's a lot of fun, but it is also a great reminder of one of life's lessons better learned early. Not everybody...
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Happy 2nd Birthday Mary Evelyn!
Two years ago, in the wee hours of the morning, James and I made the crazy drive into town while I was in hard labor, wondering if we'd make to the hospital on time. Little did we know the surprise in...
View ArticleDear Congress...
I understand your having trouble agreeing. That all of you want it your way and only your way. And you think your doing what is best for your constituents and the American People. I think you're all...
View ArticleArticle 8
I received this in an email on Mother's Day from a special mom friend Judy. Judy and I would probably never have met if it weren't for our special children and now although we see each other only...
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A Whole New Do!
This post is long overdue, but I wanted to wait till we had shocked all our family in person. Elijah has been clamoring for over a year to get a haircut like Sam's and daddy's. I have nothing against...
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2nd Annual Feeding Tube Awareness Week - What Awareness Means to Me.
Naomi wearing instead of eating her foodAt almost 2 years.I never thought I'd be the mother of a child with a feeding tube. I never thought my children would be anything other than perfect. I should...
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2nd Annual Feeding Tube Awareness Week - Why Naomi Has a Feeding Tube
I touched on this yesterday, but here it is a little more in depth. First and foremost, we don't know exactly why Naomi doesn't eat. There is not one overarching diagnosis that can explain it. We...
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